Am I a carer ?

Am I a carer ?

I am mum to a son who currently needs a lot of support with many aspects of his day to day life including dressing, self-care and eating. As he gets older, the ways in which I help him may alter but there is little doubt that he will always need me in a way that his...
To my boys ~ 9 things I want you to know about love

To my boys ~ 9 things I want you to know about love

To my boys, You can barely remember life with your Dad and I together under one roof and yet, I see that the loss of that unit is affecting your perception of love as you grow so there are some things I want you to know. I loved your Dad very much and we made some...
What ‘not coping’ looked like for me

What ‘not coping’ looked like for me

I often open my blogs by explaining that I didn’t cope particularly well with Harrys diagnosis at birth but I have realised that I haven’t really explained what that looked like for me. On the surface I looked like I had it all together and everyone thought I was...
7 ways to help your child understand facial disfigurement

7 ways to help your child understand facial disfigurement

When my twins were born prematurely I had no idea that Harry would have a rare cranio-facial condition called Goldenhar syndrome. I didn’t cope very well with the news that my son had a facial disfigurement in the early days, particularly as we weren’t sure of the...
3 reasons why this autism mum can’t win

3 reasons why this autism mum can’t win

It seems that I always get inspiration to write a blog while I’m testing my bladder control at the local trampoline centre (with the boys, I don’t go alone!) The last time I was there I wrote one of my most read blogs to date – To the mother of the life I will never...
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