10 things you would never know from looking at my boy

10 things you would never know from looking at my boy

My son has a rare cranio-facial condition called Goldenhar Syndrome as well as Autism. I have spoken before about the reasons why that combination is a blessing at times but undoubtedly people feel a few things when they look at us. Particularly on the days when one...
17 aspects of life at the side of a hospital bed!

17 aspects of life at the side of a hospital bed!

Harry recently had planned surgery on his eye socket and as ever, I found myself with time on my hands as I waited for him to return to the ward. I sat in the café and then at the side of the hospital bed and I got thinking about all the times I had been here. Waiting...
9 tips for any professional working with a unique child.

9 tips for any professional working with a unique child.

I was recently asked to give a talk at a local college to students embarking on a career as health care professionals about my experiences both positive and negative and the impact that had on me as a parent. I have to say that I really enjoyed preparing for the talk...
Am I a carer ?

Am I a carer ?

I am mum to a son who currently needs a lot of support with many aspects of his day to day life including dressing, self-care and eating. As he gets older, the ways in which I help him may alter but there is little doubt that he will always need me in a way that his...
What ‘not coping’ looked like for me

What ‘not coping’ looked like for me

I often open my blogs by explaining that I didn’t cope particularly well with Harrys diagnosis at birth but I have realised that I haven’t really explained what that looked like for me. On the surface I looked like I had it all together and everyone thought I was...
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