To the special needs teachers of my son

To the special needs teachers of my son

Apr 14, 2019 | 6 comments

I didn’t want to send Harry to a special school. I wanted him in mainstream with his twin brother doing all the things that other siblings were doing together. I wanted him to have loads of friends and memories to treasure forever. I wanted him to know that...
The Appearance Game ~ Raising awareness in a fun way!

The Appearance Game ~ Raising awareness in a fun way!

Feb 23, 2018 | 141 comments

I had no idea that my baby would be born with a rare cranio facial condition. Essentially, the left hand side of this face never formed and he was born with no eye, eye socket, nostril or ear. Despite being a twin and having lots of scans, his syndrome was never...
9 tips when considering special needs schools

9 tips when considering special needs schools

Jan 10, 2018 | 0 comments

My son Harry was born prematurely at 32 weeks along with his twin brother Oliver. Not only was he tiny (3lb 9oz) and very vulnerable but at his birth we discovered that he had a rare craniofacial condition called Goldenhar syndrome. You can read how I coped (or didn’t...
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