7 ways to help your child understand facial disfigurement

7 ways to help your child understand facial disfigurement

Feb 28, 2018 | 24 comments

When my twins were born prematurely I had no idea that Harry would have a rare cranio-facial condition called Goldenhar syndrome. I didn’t cope very well with the news that my son had a facial disfigurement in the early days, particularly as we weren’t sure of the...
The Appearance Game ~ Raising awareness in a fun way!

The Appearance Game ~ Raising awareness in a fun way!

Feb 23, 2018 | 141 comments

I had no idea that my baby would be born with a rare cranio facial condition. Essentially, the left hand side of this face never formed and he was born with no eye, eye socket, nostril or ear. Despite being a twin and having lots of scans, his syndrome was never...
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