9 tips when considering special needs schools

9 tips when considering special needs schools

My son Harry was born prematurely at 32 weeks along with his twin brother Oliver. Not only was he tiny (3lb 9oz) and very vulnerable but at his birth we discovered that he had a rare craniofacial condition called Goldenhar syndrome. You can read how I coped (or didn’t...
Another option for ear reconstruction

Another option for ear reconstruction

Ear reconstruction seems quite a strange topic until I explain that my Son Harry was born with a cranio-facial condition called Goldenhar Syndrome. One of the aspects of this syndrome include a small (or in Harry’s case completely missing) ear. In discussing the...
To the mother with the life I will never know.

To the mother with the life I will never know.

I see you. Enjoying a life I had expected a long time ago. You’re sitting at the edge of the trampoline centre reading a book. You look totally engrossed in it, glancing up occasionally and topping up the tea (maybe coffee) from your flask. Your children have their...
7 reasons why SEND education is like a snow globe

7 reasons why SEND education is like a snow globe

I do love a good snow globe as does my son Oliver. I’ve brought three back for him from various holidays. It appears that the magic of ‘shake and wonder’ appeals in the sunshine as much as it does in the winter time. Recently, I was at Harrys school for his Christmas...
Neurotypical sibling superheroes – The Return

Neurotypical sibling superheroes – The Return

I recently wrote about the 5 reasons why my son Oliver is the unsung hero of our story as the sibling of Harry who has a rare cranio facial condition and autism. I proudly recognised his patience and acceptance, empathy and maturity, forgiveness and understanding,...
7 things I never thought I’d say as a mum

7 things I never thought I’d say as a mum

Before you became a parent, how did you visualise your role? Did you see yourself as the fun mum/dad or did you see yourself as firm but fair? And at what point did you hear yourself turning into your own parents by echoing the words they’d muttered to you in the past...

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