When your child’s birthday is a tough day

When your child’s birthday is a tough day

Ive spoken before about how I didn’t really cope very well with the news that one of my premature twin boys had been born with one half of his face developed (nothing to do with his prematurity). I was stunned beyond words and to say that that day changed me...
5 ways of explaining autism to kids

5 ways of explaining autism to kids

I am quite used to explaining why Harry’s face looks different to most nowadays and if facial disfigurement is something you would struggle to explain to your child then please check out my bog post on 7 ways to help your child understand facial disfigurement as...
17 aspects of life at the side of a hospital bed!

17 aspects of life at the side of a hospital bed!

Harry recently had planned surgery on his eye socket and as ever, I found myself with time on my hands as I waited for him to return to the ward. I sat in the café and then at the side of the hospital bed and I got thinking about all the times I had been here. Waiting...
The friends you value when your child has additional needs

The friends you value when your child has additional needs

I never wanted to be the mum of a child with additional needs (see also – special needs, disabilities). It was never in the plan. When Harry received his second label in life of Autism (after his diagnosis of a cranio facial condition called Goldenhar syndrome) I...
9 tips for any professional working with a unique child.

9 tips for any professional working with a unique child.

I was recently asked to give a talk at a local college to students embarking on a career as health care professionals about my experiences both positive and negative and the impact that had on me as a parent. I have to say that I really enjoyed preparing for the talk...
A financial plan for my disabled son part 1

A financial plan for my disabled son part 1

After I spoke on radio 5 live recently about the minefield surrounding making arrangements for my disabled son after I die, I had a chat with a legal advisor Philip Warford from Renaissance Legal who was part of the team of experts who spoke on the show. Phil...
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