Why we will never be a ‘normal’ family

Why we will never be a ‘normal’ family

When my premature twins were born, we were told that twin 2, Harry, had been born with a rare craniofacial condition called Goldenhar syndrome. Before his third birthday he had also been diagnosed with autism. I didn’t want to hear these diagnoses, I...
Raising a child with autism – does it get easier?

Raising a child with autism – does it get easier?

Raising a child with autism, as with any additional need or disability, can be incredibly challenging at times. There have been moments as I have relayed some of our adventures to friends and colleagues that they have asked “do you think it will ever get easier...
Dear NHS Staff

Dear NHS Staff

Never, in the history of the National Health Service in the UK, has it been under such practical and financial strain. People are living longer, the population is growing at a rapid rate with from within and from outside the country, funding has been restricted and...
My child after diagnosis

My child after diagnosis

I was having my hair done recently and got chatting with another client. We were talking about our children and I explained that Harry is autistic. She told me that her friend’s son had recently received a diagnosis of autism and that her friend was struggling...
7 tips for school transition when your child has SEND

7 tips for school transition when your child has SEND

Transition periods are always tricky regardless of who or what is involved but school transition comes with a whole host of extra emotions particularly when your child has additional needs and / or is unable to talk to you about their experience. I found myself in...
Assisted living when your child has SEND

Assisted living when your child has SEND

I am in the process, thanks to a local grant and a hefty re-mortgage, of adding an extension to my house for Harry to have his own bedroom and wet room. This was always my intention from the day I bought the house because, back in 2012 when Harry was 7 years old, I...
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