Transition periods are always tricky regardless of who or what is involved but school transition comes with a whole host of extra emotions particularly when your child has additional needs and / or is unable to talk to you about their experience. I found myself in...
I am in the process, thanks to a local grant and a hefty re-mortgage, of adding an extension to my house for Harry to have his own bedroom and wet room. This was always my intention from the day I bought the house because, back in 2012 when Harry was 7 years old, I...
My son Harry has two diagnoses. His primary diagnosis is of Goldenhar Syndrome, a rare congenital craniofacial condition which affected the formation of his facial features. The second diagnosis is of Autism including Global Learning Delay. It is Harry’s autism...
Back in 2017, I wrote a blog post called ‘3 reasons why I can’t die’ talking about the emotional impact of leaving a child behind who will always be vulnerable and need care. From that blog, I was invited onto Radio 5 live to discuss the topic which...
In December 2018, my son Oliver was invited to help turn the Christmas lights on in our town. It was fantastic that he was asked and so, for the first time, we all ventured into the hustle and bustle, frenzy of lights, music, stalls and streams of people on the town...
Back in April 2018, I wrote about an eye-opening conversation I had with a legal professional about the steps I need to take to protect my disabled son after I die. When you are a parent of a child with disabilities or significant additional needs, thoughts about what...
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