Assisted living when your child has SEND
I am in the process, thanks to a local grant and a hefty re-mortgage, of adding an extension to my house for Harry to have his own bedroom and wet room. This was always my intention from the day I bought the house because, back in 2012 when Harry was 7 years old, I...
Autism and Sleep
My son Harry has two diagnoses. His primary diagnosis is of Goldenhar Syndrome, a rare congenital craniofacial condition which affected the formation of his facial features. The second diagnosis is of Autism including Global Learning Delay. It is Harry's autism that...
My boy is growing up – why I’m proud and why I was wrong…
My boy is growing up. Although Harry is almost 14 years old, he has always functioned at a much younger age. In many ways, he still does; He is obsessed with Vtech infant toys and still needs a lot of help with getting dressed and personal care. His communication is...
The life changing legacy of love
Thanks for agreeing to be interviewed. Could you please share your name and where in the country you are from? Hi Charlie. I'm Lisa Valentine and I'm based just outside Manchester, England. Thanks. Would you mind sharing the moment that your life changed forever? My...
A financial plan for my disabled son (part 3) The Trust Fund
Back in 2017, I wrote a blog post called '3 reasons why I can't die' talking about the emotional impact of leaving a child behind who will always be vulnerable and need care. From that blog, I was invited onto Radio 5 live to discuss the topic which I blogged about in...
Its time to talk…
February 7th is National 'Time to Talk' day with this years focus being on bringing the right combination of a listening ear, a willingness to be open-minded and plentiful amounts of tea and biscuits together as we discuss mental health Many of my followers on social...
Still birth; life, love and loss
Thanks for agreeing to be interviewed. Could you please share your name and where in the country you are from? I’m Laura, mum of five, wife of one, and we live together with our dog Oscar in Lancashire. Would you mind sharing the moment(s) that your...
5 ways of preparing for life long parenting of special children.
In December 2018, my son Oliver was invited to help turn the Christmas lights on in our town. It was fantastic that he was asked and so, for the first time, we all ventured into the hustle and bustle, frenzy of lights, music, stalls and streams of people on the town...
Vision without sight ~The incredible altered life of Louis Braille
January 4th celebrates World Braille Day but if you, like me, have no idea about the origins of braille then you're in for an interesting couple of minutes as the story is a fascinating one. Louis Braille was born on 4th January 1809 in a small village near Paris. One...
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