Dear autism, we need to talk

Dear autism, we need to talk

Dear autism, We need to talk. You knew me before I knew you. I know that you make your presence known suddenly for some families but you crept up on us gradually as I was adjusting to other news about Harrys health and I am grateful for that. There was no sense that...

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Looking back and moving forwards in an altered life

Looking back and moving forwards in an altered life

Looking back in life isn’t always the best thing to do but often I find myself remembering a time when life was so very different and comparing it to life now. My friends’ babies came home with balloons and stuffed teddies. Harry came home with a list of professionals...

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The Skevwickin Snorkelling Adventures Part 1!

The Skevwickin Snorkelling Adventures Part 1!

As we are a ‘pot noodle’ family (Skevwickin is a mash up of all our surnames), Andrew and I have been able to enjoy some pretty special holidays over the years to places like Mexico, Croatia and Cape Verde while our children have been with their other parents. Andrew...

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What will happen to my son when I die?

What will happen to my son when I die?

As a new parent, the concept of death is about as far from your mind as it possibly could be. However, when your baby has a life limiting disability, the certainty of your own death is painfully ever present. This is my reality, as it is for a large number of parents...

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Our autism stories ~ where it all began

Our autism stories ~ where it all began

Autism is a funny thing. Not funny haha – well actually, sometimes its funny haha, but funny in a peculiar way in that there are some common aspects and yet every child with autism presents it slightly differently. If Autism was a song on the X factor, each child...

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Autism, Love & Life ~ An Interview with a Step-Dad

Autism, Love & Life ~ An Interview with a Step-Dad

I was thinking today about the many ways that autism is both a welcome and annoying part of the family. I have written before about the reasons that autism is both magical and hard but its always been from my own perspective. For a change, I wanted to have someone...

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40 things we never knew about being a parent

40 things we never knew about being a parent

I was thrilled to discover that I was pregnant, stunned to find out that I was carrying twins, then thrilled again. This parenting malarkey is a roller coaster from the minute you pee on ‘the stick of wonder’ and you see the result. So many people try to prepare you...

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To my boys ~ 9 things I want you to know about love

To my boys ~ 9 things I want you to know about love

To my boys, You can barely remember life with your Dad and I together under one roof and yet, I see that the loss of that unit is affecting your perception of love as you grow so there are some things I want you to know. I loved your Dad very much and we made some...

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What ‘not coping’ looked like for me

What ‘not coping’ looked like for me

I often open my blogs by explaining that I didn’t cope particularly well with Harrys diagnosis at birth but I have realised that I haven’t really explained what that looked like for me. On the surface I looked like I had it all together and everyone thought I was...

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