Dear Harry, It’s time to think about respite…and I’m sorry.
My Dearest Harry, When I was carrying you and your Brother, I never imagined the life we live now; a life full of words like 'craniofacial syndrome' or 'autism' or 'respite' that I never expected to use. I have made no secret of my struggle to cope with our new...
Making a difference with Sense International
It feels like a lifetime ago since I was in Kenya with Sense International looking at the work the charity does to support deaf blind children and their families. I’m not going to lie, I’ve seen the adverts on TV that tug at the heart strings, showing lives a world...
SEND parenting; needing what we don’t want
I had planned the lives of my twins before they even arrived. Not in a control freak kind of way, but in an 'I'm taking for granted that my babies will be fine' kind of way and in honesty, I didn't realise I had done it until I was told it had been taken away from us...
Sharing my 9 lessons from Kenya
Recently, I was privileged to be invited out to Kenya as part of the press team with Sense International to see the work that they are doing in and around Nairobi with children who are deaf blind. I had few expectations before I went as I really had no idea what work...
Why we will never be a ‘normal’ family
When my premature twins were born, we were told that twin 2, Harry, had been born with a rare craniofacial condition called Goldenhar syndrome. Before his third birthday he had also been diagnosed with autism. I didn't want to hear these diagnoses, I didn't want...
Raising a child with autism – does it get easier?
Raising a child with autism, as with any additional need or disability, can be incredibly challenging at times. There have been moments as I have relayed some of our adventures to friends and colleagues that they have asked "do you think it will ever get easier as he...
Dear NHS Staff
Never, in the history of the National Health Service in the UK, has it been under such practical and financial strain. People are living longer, the population is growing at a rapid rate with from within and from outside the country, funding has been restricted and...
My child after diagnosis
I was having my hair done recently and got chatting with another client. We were talking about our children and I explained that Harry is autistic. She told me that her friend's son had recently received a diagnosis of autism and that her friend was struggling to cope...
Abortion and disability. My answer to the question.
Followers of my social media pages over on Facebook and Instagram will know how important it is to me that I show our lives honestly. That means showing the bad days and the challenges as well as the great days and the successes. Recently Harry has struggled with...
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