SEND parenting; needing what we don’t want

SEND parenting; needing what we don’t want

I had planned the lives of my twins before they even arrived. Not in a control freak kind of way, but in an 'I'm taking for granted that my babies will be fine' kind of way and in honesty, I didn't realise I had done it until I was told it had been taken away from us...

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Sharing my 9 lessons from Kenya

Sharing my 9 lessons from Kenya

Recently, I was privileged to be invited out to Kenya as part of the press team with Sense International to see the work that they are doing in and around Nairobi with children who are deaf blind. I had few expectations before I went as I really had no idea what work...

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Why we will never be a ‘normal’ family

Why we will never be a ‘normal’ family

When my premature twins were born, we were told that twin 2, Harry, had been born with a rare craniofacial condition called Goldenhar syndrome. Before his third birthday he had also been diagnosed with autism. I didn't want to hear these diagnoses, I didn't want...

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Raising a child with autism – does it get easier?

Raising a child with autism – does it get easier?

Raising a child with autism, as with any additional need or disability, can be incredibly challenging at times. There have been moments as I have relayed some of our adventures to friends and colleagues that they have asked "do you think it will ever get easier as he...

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Dear NHS Staff

Dear NHS Staff

Never, in the history of the National Health Service in the UK, has it been under such practical and financial strain. People are living longer, the population is growing at a rapid rate with from within and from outside the country, funding has been restricted and...

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My child after diagnosis

My child after diagnosis

I was having my hair done recently and got chatting with another client. We were talking about our children and I explained that Harry is autistic. She told me that her friend's son had recently received a diagnosis of autism and that her friend was struggling to cope...

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Abortion and disability. My answer to the question.

Abortion and disability. My answer to the question.

Followers of my social media pages over on Facebook and Instagram will know how important it is to me that I show our lives honestly. That means showing the bad days and the challenges as well as the great days and the successes. Recently Harry has struggled with...

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Incontinence and Autism

Incontinence and Autism

Followers on our social media channels will know that Harry has really been suffering since he had a UTI (urinary tract infection) back in February. His autism means that communicating his discomfort is incredibly difficult and this has led to a series of distressing...

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3 reasons why I can forgive but not forget

3 reasons why I can forgive but not forget

As well as blogging, I share the day to day antics of my unique family and our altered life on social media. Recently, I posted on our facebook page about how hard it was not to be able to rush to Harry when he was having a meltdown at school because I was at work. I...

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