11 things that autism has taught me
I am a huge fan of the app ‘Time Hop’ and check it each morning for a reminder of past adventures and dramas! Today I read that eleven years ago to the date, Harry was officially diagnosed with autism. Eleven years. Is that all? It feels like an eternity. I have...
5 ways to feel less anxious wearing a face mask
I have to admit, I didn't expect to feel as anxious as I did on day one of wearing my face mask while I shopped. I appreciate that our NHS workers (including my Mum and Sister) are wearing full PPE for hours on end and they all have my utmost respect. I am in no way...
COVID 19; Why protecting our children isn’t always helpful
Ok so first of all I want to say that this is as far from a public health announcement as you can get. Parents and carers absolutely should be protecting our children; ensuring that they are washing their hands regularly, observing social distancing wherever possible...
Dear Harry, It’s time to think about respite…and I’m sorry.
My Dearest Harry, When I was carrying you and your Brother, I never imagined the life we live now; a life full of words like 'craniofacial syndrome' or 'autism' or 'respite' that I never expected to use. I have made no secret of my struggle to cope with our new...
Making a difference with Sense International
It feels like a lifetime ago since I was in Kenya with Sense International looking at the work the charity does to support deaf blind children and their families. I’m not going to lie, I’ve seen the adverts on TV that tug at the heart strings, showing lives a world...
SEND parenting; needing what we don’t want
I had planned the lives of my twins before they even arrived. Not in a control freak kind of way, but in an 'I'm taking for granted that my babies will be fine' kind of way and in honesty, I didn't realise I had done it until I was told it had been taken away from us...
Sharing my 9 lessons from Kenya
Recently, I was privileged to be invited out to Kenya as part of the press team with Sense International to see the work that they are doing in and around Nairobi with children who are deaf blind. I had few expectations before I went as I really had no idea what work...
Why we will never be a ‘normal’ family
When my premature twins were born, we were told that twin 2, Harry, had been born with a rare craniofacial condition called Goldenhar syndrome. Before his third birthday he had also been diagnosed with autism. I didn't want to hear these diagnoses, I didn't want...
Raising a child with autism – does it get easier?
Raising a child with autism, as with any additional need or disability, can be incredibly challenging at times. There have been moments as I have relayed some of our adventures to friends and colleagues that they have asked "do you think it will ever get easier as he...
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