Why we will never be a ‘normal’ family
When my premature twins were born, we were told that twin 2, Harry, had been born with a rare craniofacial condition called Goldenhar syndrome. Before his third birthday he had also been diagnosed with autism. I didn't want to hear these diagnoses, I didn't want...
Raising a child with autism – does it get easier?
Raising a child with autism, as with any additional need or disability, can be incredibly challenging at times. There have been moments as I have relayed some of our adventures to friends and colleagues that they have asked "do you think it will ever get easier as he...
Dear NHS Staff
Never, in the history of the National Health Service in the UK, has it been under such practical and financial strain. People are living longer, the population is growing at a rapid rate with from within and from outside the country, funding has been restricted and...
My child after diagnosis
I was having my hair done recently and got chatting with another client. We were talking about our children and I explained that Harry is autistic. She told me that her friend's son had recently received a diagnosis of autism and that her friend was struggling to cope...
Abortion and disability. My answer to the question.
Followers of my social media pages over on Facebook and Instagram will know how important it is to me that I show our lives honestly. That means showing the bad days and the challenges as well as the great days and the successes. Recently Harry has struggled with...
Incontinence and Autism
Followers on our social media channels will know that Harry has really been suffering since he had a UTI (urinary tract infection) back in February. His autism means that communicating his discomfort is incredibly difficult and this has led to a series of distressing...
3 reasons why I can forgive but not forget
As well as blogging, I share the day to day antics of my unique family and our altered life on social media. Recently, I posted on our facebook page about how hard it was not to be able to rush to Harry when he was having a meltdown at school because I was at work. I...
Grief for the living
We associate grief with the sadness which follows death, the loss and the ache of mourning and life without the ones we love. But those things can also come without death. We see people grieving for the loss of their loved ones when conditions like Alzheimers have...
7 tips for school transition when your child has SEND
Transition periods are always tricky regardless of who or what is involved but school transition comes with a whole host of extra emotions particularly when your child has additional needs and / or is unable to talk to you about their experience. I found myself in...
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