We try really hard not to let our altered life hold us back from enjoying what is also a very rich and beautiful life. But, I cant deny that we often face some challenges along the way.
In my ‘adventures of an altered life’ series I aim to share with you the ordinary fun of an extraordinary journey. This will include accounts of our days out, holidays away and general life in the fast lane.
I’ll also be sharing the difficulty in making huge decisions for Harry and his future face and life as well as the results of those decisions – often hilarious and heart warming, always nerve wrecking and full of never ending hope.
Great to have you with us to share these adventures. Buckle up, it can be a bumpy ride!
When Harry was born without his left eye I was devastated. Professionals assured me that medical science was making advances all the time and would create something that looked incredible. But I didn’t want to hear it. I didn’t want medical intervention. I wanted the...read more
I never really noticed people staring at each other before I had a baby with half a face (yes, I’m blunt). The reaction we got in the early days almost made me a recluse. I was hyper sensitive to every glance and whisper. They may not have even been aimed at us but I...read more
Harry turned 12 at the end of June. He loves the thrill of unwrapping gifts (although be warned, unless it’s a remote control he’s not interested. Even if the gift you thought he’d love cost a fortune. He’s a mote fan!) However, even more than that he absolutely...read more
There is no denying that living with autism can be really hard at times. It’s frustrating and lonely sometimes but it’s also magical and amazing too. Here, to balance the points I made in 9 reasons why living with autism is hard, I want to share with you a few aspects...read more
My son, Harry is almost 12 as I write this but I have no idea how I would rate his age in his own world. His language is below 2 years most of the time, his comprehension and processing of the world could be around 3 I’d say but his ability to twist me around his...read more
In October 2016, my partner and I decided to take our four children abroad on our first family holiday. This in itself was always going to be a challenge. Finding a place that suited everyone’s needs, a destination where the weather was warm enough to keep everyone...read more
So you may or may not have seen that my son Harry has a craniofacial condition which means he has a very unique face and our journey had a rocky start (read about it here). I am a very proud mum both of him and his twin brother Oliver and, as all mums do, I love...read more
When people see Harry, without doubt the first thing they notice is his missing eye. Rarely do people notice that he only has one nostril. I don’t think anyone has ever commented on the fact that he’s only got one ear. His Dad and I were in no rush to have another...read more
Today was my first attempt at attaching Harry's new prosthetic ear. I’m not going to lie, I had a worry poo first thing. It’s a daunting thought that you’re actually going to be sticking an appendage to your child’s body. Irrational mind “What if you put it in the...read more