We try really hard not to let our altered life hold us back from enjoying what is also a very rich and beautiful life. But, I cant deny that we often face some challenges along the way.

In my ‘adventures of an altered life’ series I aim to share with you the ordinary fun of an extraordinary journey. This will include accounts of  our days out, holidays away and general life in the fast lane.

I’ll also be sharing the difficulty in making huge decisions for Harry and his future face and life as well as the results of those decisions – often hilarious and heart warming, always nerve wrecking and full of never ending hope.

Great to have you with us to share these adventures. Buckle up, it can be a bumpy ride!

To the person who feels its ok to stare. Truth bomb time.

From the start of this I am going to say that being a little taken a back when you see something that you’re not expecting is normal. It is in fact, physiologically impossible to avoid as the neurons in your brain are disrupted slightly when they receive information...

read more

When your child’s birthday is a tough day

Ive spoken before about how I didn't really cope very well with the news that one of my premature twin boys had been born with one half of his face developed (nothing to do with his prematurity). I was stunned beyond words and to say that that day changed me forever...

read more

5 ways of explaining autism to kids

I am quite used to explaining why Harry's face looks different to most nowadays and if facial disfigurement is something you would struggle to explain to your child then please check out my bog post on 7 ways to help your child understand facial disfigurement as the...

read more

17 aspects of life at the side of a hospital bed!

Harry recently had planned surgery on his eye socket and as ever, I found myself with time on my hands as I waited for him to return to the ward. I sat in the café and then at the side of the hospital bed and I got thinking about all the times I had been here. Waiting...

read more

The friends you value when your child has additional needs

I never wanted to be the mum of a child with additional needs (see also – special needs, disabilities). It was never in the plan. When Harry received his second label in life of Autism (after his diagnosis of a cranio facial condition called Goldenhar syndrome) I...

read more

9 tips for any professional working with a unique child.

I was recently asked to give a talk at a local college to students embarking on a career as health care professionals about my experiences both positive and negative and the impact that had on me as a parent. I have to say that I really enjoyed preparing for the talk...

read more

A financial plan for my disabled son part 1

After I spoke on radio 5 live recently about the minefield surrounding making arrangements for my disabled son after I die, I had a chat with a legal advisor Philip Warford from Renaissance Legal who was part of the team of experts who spoke on the show. Phil...

read more

Download chapter one of the best selling book here, for free,
and never miss another update on the crazy fun we call life!   SIGN ME UP!!

Name *

Email *

Follow by Email