I was totally unprepared to become Mother to a child with additional needs. Having looked after myself through a very happy and healthy pregnancy I didn’t expect anything other than a ‘normal’ baby (or pair of them as I had twins!) I didn’t ever imagine I would have a life any different to the lives my friends were living with their babies.
Having a baby with a rare cranio-facial condition and later a diagnosis of global learning delay and autism, shook the very foundation of who I believed I was. I didn’t cope very well at all. * Understatement* I was lost in my own life.
In ‘A Mother Lost & Found’ I share my most intimate thoughts, fears and joys. Its not all doom and gloom, I promise, but I think its really important to be honest. I write for the mother I was right at the beginning in the hope that I can offer some hope, encouragement and support to anyone else in a similar place. I was lost but now I am found. I hope to help other parents find their way too.
“And one day she discovered that she was fierce, and strong, and full of fire, and that not even she could hold herself back because her passion burned brighter than her fears” ~ Mark Antony
9 things that have helped my mental health
I have blogged in the past about my mental health journey. Initially, the shock diagnosis of Goldenhar Syndrome for my son Harry lead to depression. More recently I have been happy to share that I am struggling with anxiety like I've never known before, brought on by...
Dear Harry, when the time comes, it’s OK to forget me
I took Harry to our local trampoline park recently and was struck by something that I wanted to write about. I have to say that this happens ALOT at the trampoline park. I've written some of my favourite posts there like my letter to the mum with the life I will never...
9 reasons for anger in our altered life
If you are a regular reader of my blog you will know that I never expected the life I have today when I was pregnant. For those who are new to me and this page I'd direct you to my account of how life changed forever in a moment and 'what not coping looked like for...
Key milestones and loss in an altered life
From when our babies are first born we are watching and assessing them, even on a subconscious level. We are waiting for them to hit their key milestones – crawling, walking, being free of the nappy. Once their little red book with the percentile scale that I hated...
When your daughter becomes a mother with an altered life – An interview with a Grandparent
June is always a strange month for me. Its my boys' birthday on the 30th and that's always a fantastic celebration of the little people who I adore. It wasn’t always that way though and sometimes through the month I reflect on the bliss of ignorance as I progressed...
Now that I understand. A poem by Charlie Beswick
This isn’t the baby I dreamed of This isn’t the life I had planned I think you have made a mistake here I really just don’t understand I don’t think I’m up to the job spec A baby like this needs much more Than a woman whose mind is a ship wreck And a heart that is...
What I failed to see when I saw my son
I felt very blessed to be expecting twins and had a fairy tale future lined up for us all even before my babies arrived in the world. It turned out that my fairy tale would instead be somewhat of a Tim Burton production – a bit dark, pretty weird at times but a...
Our autism stories ~ where it all began
Autism is a funny thing. Not funny haha – well actually, sometimes its funny haha, but funny in a peculiar way in that there are some common aspects and yet every child with autism presents it slightly differently. If Autism was a song on the X factor, each child...
What ‘not coping’ looked like for me
I often open my blogs by explaining that I didn’t cope particularly well with Harrys diagnosis at birth but I have realised that I haven’t really explained what that looked like for me. On the surface I looked like I had it all together and everyone thought I was...
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